We finally got our news today (at 3:30pm) and got a diagnosis. We are very happy with the news...just as we had prepared ourselves for, the corpus callosum is not there- at all. We know that the best news ever would be for everything to have shown up on the MRI that should be there and be told the ultrasounds were wrong. BUT...the second best news is that everything else looks good and appears to be functioning properly- only the corpus callosum is missing.
This is good news, though. The exact diagnosis for all of you medical folks is: isolated agenesis of the corpus callosum. We have been told that Anderson will have mild symptoms, if any. We have also been told that he will surprise us...things that we think he will struggle with he may have no difficulty with at all.
Jamie and I feel like a load has been lifted off our shoulders because now we KNOW. There is no more guessing of whether it's there or not there...no more wondering if there are other things involved or just this. Let me tell you, knowledge is freedom.
I feel like I can now move on and begin preparing for a new baby, just as any expecting mother does. I can enjoy the final 13 weeks (or less) of the pregnancy, without worry. You see, there isn't a lot that can be done now, until he is born. Now that we have the diagnosis, we know a little more of what to expect. We know that we will continue being seen by my regular OB as well as the specialists at Vanderbilt. We know that we will see a pediatric neurologist at our next visit to Vandy to get more information about what to expect when he is born. We know that we will deliver at Vanderbilt and that many pediatric specialists will be available, IF they are needed. We know that once he is born, he will be able to receive therapy from Early Intervention soon after birth to help him meet those milestones. We know that pretty much the rest is up to him...it will be gauged on how well he does.
We know that no matter what, he will be loved and adored by many friends and family. He will be the light in his big sisters' lives, and a blessing to anyone who is around him. We know that with all of the support and love he will have in his life, he is capable of ANYTHING...I can't wait to see what all he is able to accomplish!
Thank you again for your prayers. This diagnosis truly is an answer to prayers...you see, it could have been much, much worse. We are so thankful for this diagnosis. We are relieved and excited about what the future holds for our family. God does answer prayers, and we are humbled by the number of prayers that have gone up daily on behalf of our family and sweet baby.
5 comments:
I have been blessed by your positive outlook...will continue my prayers for you!!!
wonderful news for Anderson and your family. He will join a beautiful family and loved by all.
Connie A.
WONDERFUL!!!!! Will continue to pray!
Anderson will be the greatest gift. You and your family are so blessed.
andie
Can't wait to meet Anderson and welcome him into the family!!! Luv you so much and I am so proud of you both!! God has truly blessed Anderson!!! Peggy
Post a Comment